Opinion: Column: OMG

Opinion: Column: OMG

Are you sitting down? I wasn't when I got the call from my oncologist after hours this past Thursday. He was calling me with the results from the previous week's biopsy. He said he had "exciting news." He said the biopsy was not only "typed" (genetic mutation/biomarker) but, as he continued to bury the lead using medical jargon about the slide and stain, finally got around to it: I may not have (or have had, still to be discussed/possibly determined) non-small cell lung cancer, stage IV. Instead, I may have (always had) thyroid cancer, specifically, papillary thyroid cancer, referred to as "the friendly cancer," by my oncology nurse the following infusion when I shared with her these preliminary findings. "Friendly" referring to one's survival/life expectancy after diagnosis.

Moving forward to begin/confirm this new working diagnosis, I had an ultrasound of my thyroid the next day, and Friday the following week, Team Lourie will be meeting with an endocrinologist. She (I saw her picture on the wall outside her office) presumably will have had a discussion, or at the very least, received an email/referral from my oncologist citing chapter and a few verses about who I am, how I've been treated, what scan/results I've had, and of course, the news of this most recent biopsy, explaining why he reached out. I really don't expect, given my oncologist's excitement, and the fact that he called me (only the second time in nearly 11 years) that the endocrinologist will be likewise informed and possibly even excited to share a similar diagnosis with a previously-characterized-as-"terminal" patient who (yours truly) might not be "terminal" after all. "Might not" being the operative phrase I'm still having difficulty grasping.

Somehow, I have to slow my roll and pull back on the reins. We're still early days here. Right now, I don't know anything definitive, so I'm not quite ready to call this a "Festivus miracle." Though at present it all sounds fairly promising, it's not exactly cast in stone, and neither has a revised Thyroid-cancer-treatment plan been put in place. I'm still a lung cancer "diagnossee" and one still waiting for the other shoe to drop. Therefore, until I'm told otherwise, as of now, I'm scheduled for my bi-weekly Opdivo immunotherapy infusion on Jan. 3, 2020.

Now, why all of this is worth writing about, prematurely as it is, is that oncologists, almost by definition, are typically not the bearer of "exciting news." Generally speaking, they are giving bad news and saying it very directly at that. As was said to me in late February, 2009: "Why not take that vacation you've always dreamed of while you're still feeling good?" The implication being quite clear that it's likely to get worse from here. To receive a call like I did Thursday from my oncologist now implying that it might get better from here is completely out of the ordinary. Moreover, if he initiated such a communication, I should probably take him at his words and take him very seriously.

Right now, I am possibly elated to be over the moon. However, it's not as if I've been given a clean bill of health. Cleaner, yes, but one still with a significant balance. And until I look the endocrinologist in her stethoscope and hear some magic words, I am keeping my powder dry and not shouting off my mouth – too much.

Cancer is a funny business. There are twists and turns and unexpected results, much of it not controlled by the doctors. And though I may be on the precipice of being blessed with some amazing, life-altering news, this time for the unbelievably good, I am still a week, maybe even weeks away from knowing with any certainty. In the interim, however, I am certain of one thing. If this change in my status does occur and I'm given back my life expectancy, somehow, I will try and return the favor.