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Pictured with his brother, 4-year-old John Gluck, diagnosed with a rare and severe form of muscular dystrophy, is rooting for doctors at the National Health Institute and throughout the world to find the cure to his degenerative muscular disease. Eat at Santinis Restaurant, 11804 Baron Cameron Ave., Reston, from 5-9 p.m. on Thursday, Feb. 7, and 15 percent of the bill supports Cure CMD.

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Family Raises Support Fighting Son's Rare Disease

Two hundred plus friends and family will descend on Santinis Restaurant in Herndon to raise support and awareness for Congenital Muscular Dystrophy on Thursday, Feb. 7, from 5-9 p.m. One in 10 Americans is affected by a rare disease. John Gluck, of Herndon, is that one in 10 with a rare form of muscular dystrophy called congenital muscular dystrophy (CMD). As a rare group of diseases causing muscle weakness at birth, CMD is under-recognized and under-diagnosed by physicians. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older. There is no cure and no treatment to slow disease progression.


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